Girl, 9, who suffers from a rare condition is given the ‘gift of walking’ after being in lockdown for a year

A little girl who suffers from a rare condition and has been in lockdown for almost a year has been given the ‘gift of walking’ thanks to the generosity of a charity.

Nine-year-old Meghan Kewley, suffers with a a condition called cardiofaciocutaneous syndrome, which means she uses a wheelchair, is non-verbal, has severe development delay and suffers from regular weekly seizures.

Due to the Covid-19 pandemic, the youngster and her mum and dad, Amanda and Michael, from Nantwich, have been in lockdown since March 2020 – which means they haven;t been able to see family and friends and Meghan has not been able to go to school.

Speaking to CheshireLive, Meghan’s dad Michael said his daughter found the change in routine difficult due to the pandemic, but no matter what she faces “always has a smile on the face.”

He said: “Meghan’s routine did change quite a lot, she couldn’t go to school and didn’t understand why.

“During the first few months in the night she couldn’t sleep and was very agitated.

“Meghan being stuck with two adults all the time was also a concern for us. When Meghan has had physio to the home she has not been able to see them because of the masks.

“But she goes through so much and always has a smile on her face.”

However, the family were given a “life-changing” gift in the form of a walking frame from the Steve Morgan Foundation after being previously denied funding to get one.

This has enabled the brave nine-year-old to spend time outside in the fresh air and have exercise rather than sit in her wheelchair.

The couple said seeing Meghan so happy and being able to see other people from a distance after being in lockdown so long has been ‘priceless.’

Michael said seeing his daughter take steps with the walker was very emotional.

He said: “People have been coming up to us and saying how smiley and happy Meghan is.

“Meghan making other people happy makes us happy.

“People have said they didn’t realise we lived here as she was always in the house because of COVID-19 and now they’re seeing her out.

“Seeing my little girl do that was very emotional. I have never seen my daughter do that before.

“We can’t thank the Steve Morgan Foundation enough. They have given Meghan the gift of walking.”

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