Little Chester Davies is battling a heart condition which left him needing major surgery when he was just two weeks old.
The tot was born on May 22 with complex heart problems and has been in hospital ever since.
Parents Jasmine McCue and Morgan Davies, of Fegg Hayes, have been told he will need two more operations before he is six, and his chances of survival from then will be 67 per cent.
Following Chester’s birth at the Royal Stoke University Hospital, Jasmine, aged 19, and 21-year-old Morgan have spent five weeks away from home while he is treated at Birmingham Children’s Hospital.
Restrictions imposed due to the Covid-19 pandemic mean only one of them is allowed to see their son at any one time, and they have not been able to see their families for much-needed support.
Chester’s heart problems were picked up during a growth scan when Jasmine was 28 weeks’ pregnant.
Two weeks later she had another scan at Birmingham, where she and Morgan were told their baby had heart problems.
Chester has double inlet left ventricle, which affects the valves and chambers of the heart; pulmonary atresia, a form of heart disease in which the pulmonary valve does not form properly; and dextrocardia, a condition in which the heart is pointed toward the right side of the chest.
He was born at 37 weeks by a planned caesarean section, as doctors feared he would not survive a natural birth.
Jasmine said: “I held him for about a minute and then he was taken to neo-natal and I didn’t see him for hours. The consultant had said he may be born breathing or he may not. We didn’t know if he would survive.
“Morgan was with me for the birth but he had to leave as soon as I was out of recovery. It was really hard. When you have a baby you expect to be able to hold them, not for them to be taken away.”
Chester was transferred to Birmingham when he was three days old so he could have the surgery. But he had an inflamed bowel which meant he could not have the seven-hour operation until he was two weeks old.
The surgery went well and Jasmine and Morgan have been able to stay near the hospital in Birmingham, at Ronald McDonald House, while Chester recuperates.
Jasmine said: “It’s been horrible being away from home. You get so homesick and you can’t see your family. I see other families together online and I feel jealous because I know it could be a long time before it’s us. The three of us haven’t been together in a room since just after he was born.
“When you are pregnant you don’t expect all this. We want to take our baby home but we know he has to be well enough first.
“When I hold him it’s a massive relief. It feels like a bit of normality because you can hold him like you would if you were at home. But then he has to go back in the incubator.”
Morgan added: “It has been really emotional. It has been very stressful and I was worried sick when he went in for surgery. It’s upsetting not knowing when we’ll be able to take him home. That’s all we want.”